International Porphyria Awareness Week PAG Perspectives: U.S.

This video was created for US audiences. Kristen Wheeden and Desiree Lyon Howe from the American Porphyria Foundation discuss the importance of raising awareness of porphyria, a rare, often genetic disease, and how the community can get involved in International Porphyria Awareness Week. For more information on porphyria, visit https://www.gpac-porphyria.org/​
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